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ALZHEIMERS AND DEMENTIA
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APE EXECUTIVE BOARD MEMBERS




ALZHEIMER'S AND DEMENTIA
"For Caregivers"


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"VERY SPECIAL PLACES FOR VERY SPECIAL PEOPLE"





This site is under construction.
Please be patient.
Those sites marked with an * have been verified.
Thank you.
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please contact us.



AS GOOD AS IT GETS

THE FOLLOWING RESOURCES ARE "SAVING GRACE"
SPECIAL PICKS

These are "must sees"!



THE ELDERLY PLACE
http://www.geocities.com/~elderly-place/

EXCELLENT!
Marci provides a special place for anyone
who has had to deal with Alzheimer's in lives!

This site is Alzheimer specific with an
emphasis on caregiving
"the purpose is to enlighten you
on dementing diseases and to help you
by adding informational links to similiar topics.

This site also includes a Caregiver Support Forum,
a Nursing Home Abuse Support Board
and a Caring From the Heart E-Mail List

An excellent site
with a comprehensive resource list
and a variety of beneficial information
for caregivers and those interested in
elderly issues

Marci is an initial supporter
of the "Graying With Grace, A Ribbon Runs Through It"
Campaign Against Elderly Abuse.



EMPOWERING CAREGIVERS
Excellent
Chats, Resources, Message Boards, Newsletter
Don't forget to try the journal exercises!
Gail provides about everything one needs to
know about caregiving
and care-receiving.










EXCITE'S WEBSITE GUIDE TO ALZHEIMER'S

YOU


YOU
THE CAREGIVER. ARE SPECIAL, TOO!

Don't forget that!

HELP FOR TIMES YOU FORGET!



TWELVE STEPS FOR CAREGIVERS
by
Carol J. Farran &
Eleanora Keane-Hagerty




KIT'S NEVER TOO LATE TO TAKE CARE OF YOURSELF


EXCELLENT ARTICLE

SPOKANE.NET
Strain of caregiving lethal, study indicates
Elderly spouses 63 percent more likely to die within four years than other spouses




COPING WITH ALZHEIMER'S
http://www.island.net/
mjoss/010198a.html


At the Heart of Alzheimer's
CARING & COPING

by Carol Simpson



Home Care Plan for
Succeeding at Caregiving




CARE TIPS AND GIFTS
Caregiving Tips for Including the Cognitively-Impaired
in the Holidays





STAGES OF ALZHEIMER'S DISEASE

REISBERG MODEL

from ALZHEIMER.COM
STAGES OF ALZHEIMER
DISCUSSION



fromTHE COPING WEBSITE
Adapted from
Reisberg, B., Ferris, S.H., Leon, J.J. & Crook, T.
The global deterioration scale for the assessment
of primary degenerative dementia.
American Journal of Psychiatry, 1982.
Maintained by the Men's Alzheimer Support Group
of Rochester, Minn.
http://www.isl.net/~hoffcomp/stages.html



THE THREE-STAGE MODEL

from THE ALZHEIMER'S MODEL
NORTHERN VIRGINIA CHAPTER
THE THREE STAGE MODEL
OF STAGES OF ALZHEIMER DISEASE





INSTITUTE FOR BRAIN AGING
The Stages of Alzheimer Disease







QUICK TIPS

Coping Techniques and Experiences
by Bob Hoffmann -
http://www.isl.net/~hoffcomp/hoffcope.html

ElderCare Online's
Alzheimer's Care Channel
Articles on Alzheimer Disease
and Caregiving Tips



BATHING TIPS

Bathing

"Throughout our lives
we bathe daily and consider this part of our daily routines.
Being sure another person has bathed may difficult.
There is no one right way to bathe.
Its really is whatever works for you.
In the earlier stages of dementia,
bathing may not be a problem.
It helps to set up routines for bathing early on.
Try to keep bathing as
a simple and routine as possible.
Some of these suggestions may help."



MEALTIME TIPS


SAFETY TIPS FOR HOME MODIFICATION

Worksheet for making the home safer!


Solutions for Living
with Alzheimer’s
The Caregiver’s Guide to
Home Modification
http://www.isl.net/~hoffcomp/homesol.html




BEHAVIORS

POSITIVE APPROACHES TO DEMENTIAL CARE IN THE HOMEHEALTH AND AGE.COM
Novartis Foundation
For Gerontology
(Go to the Alzheimer's page,
Then to Current Interventions)





RESOURCES







The Little Boy And The Old Man

Said the little boy, "Sometimes I drop my spoon."
Said the little old man, "I do that too."
The little boy whispered, "I wet my pants."
"I do that too", laughed the little old man.
Said the little boy, "I often cry."
The old man nodded, "So do I."
"but worst of all", said the little boy,
"it seems grown-ups don't pay attention to me."
And he felt the warmth of a wrinkled old hand.
"I know what you mean", said the little old man.
author unknown








TEST YOUR KNOWLEDGE OF ALZHEIMER'S DISEASE


Quiz Quest on Hearing the
Voice of People with Dementia







ALZHEIMER'S INTERNATIONAL

THE ALZHEIMER'S ORGANIZATION


THE ALZHEIMER PAGE
Washington University

ALZHEIMER PEARLS
FROM THE MAYO CLINIC



ALZHEIMER RESOURCE CENTER,INCORPORATED


Dementia, Care and Ethics

Pamphlet of Information For Caregivers
Excellent information on such issues as
autonomy and other issues concerning
the rights of demented persons
and those with Alzheimer's
for the non-institutional caregiver





Ask NOAH About: Aging and Alzheimer's Disease




ADEAR
LEGAL ISSUES IN CARE&TREATMENT,1994

A Report to Congress of the
Advisary Panel on Alzheimer's disease







THE RIBBON

A Website inspired by
The Ribbon Newsletter, created
provide information for caregivers
dealing with Alzheimer's
EXCELLENT SITE with a comprehensive resource list




AIDS FOR DAILY LIVING


SOCIAL WORKERS AND ALZHEIMER'S


AGELESS DESIGN
Great!


BOSTON UNIVERSITY ALZHEIMER DISEASE CENTER



THE COUNCIL CLOSE-UP
Illinois Council on Long-Term Care
Alzheimer Activities






CHATS


DOUG KECK'S HOME PAGE
INFORMATION ON CHATS
Pick's Disease Information

WEB OF CARE






SUPPORT

Alzheimer's--Caring from the Heart

Frena Gray-Davidson, Alzheimer's Educator
Practical Support and Information for Families
and Caregivers of Persons on the Alzheimer's Journey


A YEAR TO REMEMBER



CAREGIVER SUPPORT NETWORK
http://www.caregiver.on.ca/


EXCELLENT

KTHE COPING WEBSITE
http://www.isl.net/~hoffcomp/




CARE RESOURCES

Gregg A. Warshaw, MD
Alzheimer's Disease: General Medical Care



DEMENTIA CARE RESOURCES


PRODUCT RESOURCES

THE ALZHEIMER STORE





MEDICAL RESOURCES

TUBE FEEDINGS

ALZHEIMER.COM
Tube Feedings Do Not Benefit Dementia Patients



ORIENTAL TREATMENTS FOR ALZHEIMER'S


MEDICONSULT.COM
ALZHEIMER SECTION
http://www.mediconsult.com/mc/mcsite.nsf/conditionnav/alzheimers~sectionintroduction






COMPREHENSIVE RESOURCES


ELDER CARE ON-LINE NET
Excellent Resource


CAREGUIDE
Long Distance Caregiving: Establishing a Support Network





LONG-DISTANCE CARE-GIVING


CAREGUIDE
Long Distance Caregiving: Establishing a Support Network


BIBLIOPHILE


THE FOLLOWING ARE SOURCES
ON LINE AND OFF
THAT PROVIDE ARTICLES OF INTERST
TO THE CAREGIVER.



ELDER CARE: MORE HEART-RENDING FOR DAUGHTERS THAN FOR WIVES?
http://www.newswise.com/articles/1998/3/CARE.SUM.html






SENSORY STIMULATION THERAPY

BRIGHT EYES PROGRAM

A Sensory Stimulation
Intervention for Patients with Advanced Dementia:
An Interview with Scott A.Trudeau, MA, OTR/L
Scott A.Trudeau, MA, OTR/L
is Clinical Director for Rehabilitation




ALZHEIMER DISEASE WEEKLY






ANNALS OF LONG TERM CARE

CARE 4 ELDERS




BIBLIOGRAPHY

Aronson, J.
Women's perspectives on informal care of the elderly:
public ideology and personal experience
of giving and receiving care.
Ageing and Society, 10,
1990, 61-84.



Binstock, R.H., S.G. Post & P.J. Whitehouse (eds.)
Dementia and aging.
Ethics, values, and policy choices.
Baltimore/London, The Johns Hopkins University Press, 1992.



Callahan, D.
What do children owe elderly parents?
Hastings Center Report, 15,
1985, 32-37.



Callahan, D.
Terminating life-sustaining treatment of the demented.
Hastings Center Report, 25, 1995, 6, 25-31.



Finch, J. & J. Mason.
Filial obligations and kin support for elderly people.
Ageing and Society, 10, 1990, 151-175.



Jecker, N.S. (ed.)
Ageing & ethics.
Clifton, New Jersey, Humana Press, 1991.
Kitwood, T.
Brain, mind and dementia:
with particular reference to Alzheimer's disease.
Ageing and Society, 9, 1989, 1-15.



Kitwood, T.
The dialectics of dementia:
with particular reference to Alzheimer's disease.
Ageing and Society, 10, 1990, 177-196.



McCullough, L.B. & N.L. Wilson (eds.)
Long-term care decisions.
Ethical and conceptual dimensions.
Baltimore/London, The Johns Hopkins University Press,1995.



Nelson, J.L. & H.L. Nelson.
"He's becoming a little confused".
A guide for families through the moral problems
caused by Alzheimer's and other dementing diseases. (manuscript)



Olson, E., E.R. Chichin & L.S. Libow (eds.).
Controversies in ethics in long-term care.
New York, Springer Publishing Company, 1995.



Pollitt, P.A., I. Anderson & D.W. O'Connor.
For better or for worse:
the experience of caring for an elderly dementing spouse.
Ageing and Society, 11,
1991, 443-469.



Post, S.G.
The moral challenge of Alzheimer disease.
Baltimore/London: The Johns Hopkins University Press, 1995.



Wicclair, M.R.
Ethics and the elderly.
New York/Oxford, Oxford University Press,1993.





LEGAL, ETHICAL AND FINANCIAL ISSUES IN ALZHEIMER'S





ADEAR
LEGAL ISSUES IN CARE AND TREATMENT, 1994
A REPORT TO CONGRESS OF THE ADVICSORY PANEL ON ALZHEIMER'S DISEASE
http://www.alzheimers.com

LEGAL,ETHICAL AND FINANCIAL CONSIDERATIONS (ALZHEIMERS)
http://healthinaging.com


EACH (European Alzheimer Clearing House)

EXCELLENT

Ethical Issues
Download the pamphlet "Dementia, Care and Ethics"
http://www.each.be/Introduction/WP5/EthicalIssues.htm

ALZHEIMER'S DISEASE AND RELATED DEMENTIAS ACUTE AND LONG TERM CARE SERVICES
A REPORT TO CONGRESS OF THE DHHS ADVISORY PANEL ON ALZHEIMER DISEASE
http://www.alzheimers.org/acute96.html


"Saving Grace"
2610 S. Douglas Hwy. Box 320
Gillette Wyoming 82718
USA

gracechild_3@hotmail.com

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