UPDATE: We would like to publish your unique experiences as
in regards to your fight or maybe your change in your life style
as you found necessary because of MS.
We are intrested in MS affected people in all areas of disability.
We can't pay you anything as we our selves work for the love of
the writing .But you would have the prestage and honor of
being published on one of the more visited private MS related
web sites. If you are still interested email to either of us
Eileen at Lobosgirl@aol.com or me Richard at RET1000@aol.com
Dec.2,2000 I know two sisters in Ohio who have had MS an
the progressive form since I have know them which is
about 20 years. they had MS before I did , but I met them
at a disability camp. They both have been wheelchair
users all the time I have know them.
But a more cheerful two are hard to find. They were up
tricks at the disability camp. I had a scooter which
was brand new then. I though it would beat anything.
They showed me. The one was a good roller in her chair
and she beat me easily in a race.
They knew how to dance in their chairs,they could make
it rare up with the music.they were and still are a total
blast.I justlove receiving e-mail from them.They have more
jokes, while some aren't so clean, I still love them.
What makes people like such whom you just love being around?
The do pool and billards too.They play the piano.
they are just full of life . Eventually you almost forget
that they have a disability.Life is with them, it did
not exit them because of their condition.They just
never considered taking a reserved life style.
I also remember such a girl when I was in high school.
She had had polio and still need her legbraces and crutches
to get about. We had lockers about three away from each other.
She was sweet and never got rid of the smile on her face.
She even had it at the calling hours for her mother.She also
had several men who really wanted her enough to be serious
about marriage. She married one and lived with him until he
died.Recently I saw her at the class reunion. Naturally
she was surprized to see me needing crutches.But
she just passed it off with wisecracks .It helped me a lot
to face other just because of her attitude. Had I been single
I think I would have wanted to date her after the reunion.
She was always a bit forward. she painted her wooden crutches
the school colors ,red and Blue.Her handicap never bother her
and everyone knew it.
Sept.22,2000------ I know there are more poets out there.Please send them.
We need seasoned MS people who have had some experience with this adjustment.
to MS and the changes it brings. RET.
August 14,1999 poem by Bemice Clarke Ryan
written soon after she was diagnosed MS in1976.
Multiple Sclerosis
Oh Lord, I dread this illness in Me,
This mystery that has eluded even the best minds
of science.
I am young yet feel so old,And hate the power that
my power away.
I truely know the beauty life holds.
it lies within me and I grasp it and love it,
and wish never to let it go-
But this illness strikes without warning.
It has left me numb, and staggering,and
blurred of vision.
Yet through it all you have blessed me ,Lord-
For in your Mercy,as sure as I have the horor of
feeling the desdness in my body,each time You
have been there with me ,and for that I thank You
Lord.
I am powerless over this might and distructive force
within me ,Lord But You are not. Touch me.
Wonderful B! RET. Thanks for sending the poem.
Hi readers and fellow MS ers;
We looking for your material that you
would like to share on this web site.
I really must be the final judge of when
it gets published.
We Know you are all worthy of a story or
poetry.
We can't put pictures on our page ,but we
like to see you.
We retain the right to use it at what
time I can fit it in.
Please remember that there is a wide
spectrum of MS people.
If you would like to write a whole article.
Please send me any information that you
would like to share with all the MS
readers.Many of them are in need of
any inspiritional sentences or expressions
that you care to share. We will not mention
your name.But I'm looking for any tips
you have with the successful living
with your MS realities. RET1000@AOL.com
Lobosgirl@aol.com Up dated 3-10-99
I'm also always looking for a good thought
for the day.
If this page is to be like I originally
conceived it to be as a magazine, it must
have input from others.
Thanks for your consideration. E-mail it
to me .
RET1000@AOL.com |
There was a time I didn't even like to wear a Depend or similar products .
Then just like my crutches which had to go full time and my braces too.
Now I must have a control of my bladder.
Some don't like the "rag or diper" so why not try
www.allheartmedical.com
The company is run by the disabled just as www.Keenmobility.com
Some how I feel better dealing with a disabled person telling me the real truth.
When i got my first wheelchair when we still lived back in Akron I went to a dealer I knew had a actuall disabled person working for him in the wheelchairs and scooter dept.
Getting back to removing worry as we have enough difficulties so why worry about incontinents? Mine goes on evey morning just like my braces.
Richard |