Life as an MS person, all is not lost! - My life is still just as active and happy See panel 3.and 4 - Personal - http://maxpages.com/happymspage/Life_as_an_MS

Update Aug.18,2007 I have discovered being now a severely disabled person
with much progression over the 26+yrs of having primary Progressive MS
(PPMS)I've had no remissions just a slow loss of legs and bowels and bladder.
There are days I just have to stay home and need nothing to intrupt as I'm sick and
usually want no visitors ,let alone haveing obligations.
Frequently a club will need a officier .They always say I can do the job of
secretary from a seated position.But this is just waht i'm saying.You or I
with PPMS should never enter into any obligations that might involve us
being depended upon by a group. We have terrible ays and even a week or
two when we don't even want visitors.
Its enought for us in wheelchairs to just get out to the meetings or dinners
now and then.

I remember it well a woman i used to know in the Akron MS support group.
She was as long as I knew her always a wheelchair user.She always want to
obogise and make people happy.I know she had a lot of bad days as I would
just call her on the phone and she would answer,thanks for calling but its
just a good day,and then hang up.
Someone talked her into seeing a musical production at the dinner theater.
I saw her and several others as soon as we also got there as they were in
the same row but further down the way.
I went over to briefly say hello and she motioned to lean over.
She wispered in my ear not a nice day I don't think I'll make it to the end.
Sure enough before the first part was over she was having struggles and
couldn't control her clounising,They wheeled her out while the program was
still going.
Later in about a week later i called her and she told me she really didn't feel good
but they all wanted her to go and said "it will do you good to get out ."
RET

I know you think I'm crazy thinking,
life as a progressive MS person is still
a ball. But my life still is and most of
it is very severely limited .

But forget all that and concentrate
on living. The good life is what you make
it. List all the things you can do, and work
to improve your performance of those
activities.
Can you fish? Draw, paint, play a musical
instrument, operate your computer,write or
be a good listner to other's problems.
The latter type of person is hard to come
by these days.
Try to spend your time productively
not on the TV.I know of MS people that
do well at pool or swimming in the pool.
I know some that still work and they are
full time wheelchair users.
If you have read this article and
consider your self active and still vital
please email me and tell me of your
victories over MS and your worthy use of
your time.
Remember one great thing, try to console
your fellow MS affected brothers and sisters,
You never know when they really need it. Call
them up if they are local,send email to the
ones that have a computer and are on line.

There is still your MS society that needs
your free time.They have jobs that you can
perform in there office, and those you could
do at home. I did a lot of telephone work for
them one year. I still do.
Your church also needs you. I found out
that there are others in the congratation that
are listed as "shutins" I called on some of these
people, many were just as able as me.I was in
a wheelchair or scooter and getting around town.
When you pull up to there home and come out of
your vehicle in a scooter, and proceed up their
ramp, they take notice.All disabled are a little
more inpressed when another disabled gets to them
on their own power.Then when you tell them that
you go to church almost every Sunday and that
there are some choice spots to park you scooter,
then you might get them there in the future.
Sometimes they really need a ride and that
could always be arranged.

When you have an agenda that has means something,
you will be happest. RET.

Eileen Lukeman and Richard Tanner

FL.

Eileen(Lobosgirl) and Richard (RET1000) both at aol.com

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Page Updated Wed May 7, 2008 9:45am EDT