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Thought for the Day
Keeping cool this summer
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The Bacfelcon Pump
Swimming Is the Best Exercise
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Think Positive
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Life as an MS person
Our Unwelcome guest MS
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Give Yourself A Break Part 2
Stress leads to new lesions
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We do what we can do
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Know how to relax and live
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Life after MS sets in
How the Road with MS could Go.
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ART anyone can do
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How I deal with MS Fatigue
Understanding The Whole Body
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The right yardstick for you
WHEN A PARENT HAS MS
MS
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The best climate to live in
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MS is no place for wimps
A proactive approch to your MS
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Full Time Wheelchairing
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My 20 plus years as a MSer
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Meeting Maxine
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MS attacks and takes more grou
the lesson of disable bodiesA short story about an MSer
Pick and chose your prioritiesPrimary Progressive MS
mainly a form equally sharedThe things to expect in PPMSMaking a go of it
Primary Progressive MSliving a severely disabled
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You just found out it's MSNewly diagnosed MS patientsIts bad for your health
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Broken BeautiesLive your best way
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keep in touch with doctorPlanning your futureNew research in MS
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You might need a power chairstory of beauty in deformed
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MS Or Who Doesn't Have MSRelationship Between A PersonStress is one of your enemies
Learn to relaxThe Opposite of StressYou will roll better than walk
Living alone in a wheelchairboarderline need of wheelchairWheelchair users only
Wheelchair Living if it goes that wayetc. ms interests
some Ms related web siteslinks to other MS pages
Other MS pages to seereinvent your life again
Reinvent your selfsome of these chips are here
Medical chips you might needwhy exercise?
Keep those organs going!Exercise to keep you upBraces why you many need them
A brace will actually extendA functional need for a brace|
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| Give yourself A Break |
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| The power of your computer, your magic electronic carpet |
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| Update: April 15,2008 see heading #2 | A break from work or responsibility if you please! |
| Update:April 15,2008----- Actually I still have good health,if MS isn't counted. I'm just disabled with my crutches and my AFOs.I get about easily with my scooter.I still have a wonderful life. Its all how you loook at your self and how well you have reinvented your lifestyle. RET4/15/2008 UP date Oct.4,2007 Your computer really has nearly all the worlds knowledge. Far more that any set of volumns of books .This is what I have always admired about the computer.I can now be in contact with Multiple sclerosis affected persons world wide.I have also discovered much more about MS that my doctor has time to to tell me written usually in plain English When I was first diagnosed MS there were no betaserons or \avonex. You just prepaired for a life of physical decline with out any medication.There was going to be some degree of disability and even that would change. Now I rest a lot ,sit a lot and plan few out of the home activities without my scooter to be my legs. Along about 6 months after dx I decided to reinvent my life. I could still think. My brain power was still vital and leaping when the body didn't. By reinventing your future,you are thinking what you would really like to do that your body will permit. I'm not going to list a bunch of activities,that's up to you. There are a lot of creative activities that can be your pearl.The challenge to your mind will more than make up for a uncooperative body. The life you transfer your ego to will serve you to maintain you self respect. My manicurist recently told me,"Every one of the 5 MS people I know are smart and highly acomplished" And they seem to find ways to continue to be mentally active and productive. This is not the first time I have heard that statement nor is the last I'll probably hear it.This might be a good perception we would like to hear. We are different but we are not defeated in our new condition.We have the better disease if we could choose. It could have been cancer,for which the surviver % is still poor.With heart problems although there is much reaserch, it's still the leading cause of death.Not all of us end up dead from MS. Isn't that good news? There is still no exit out of MS. We are stuck here like someone in a deserted shipwrecked island. Here it is Sept 2007 and I'm still dependent upon a wheelchair. Its an easy life and I try to only accomplish two minor things a day ,provided I can do them seated.RET9/29/07 |
We get after a while so disabled work is too fatiguing as many of us would get so exaused we would keep dropping off to sleep.Manybe eventuall asked to quit or even be fired. i just finished working in the ticket office at University of Central Florida for one day .I was seated all the time in my wheelchair as I always get easy sitting jobs every time i help out with the Annual Shriner's circus .But one day is all I can do as my accululated fatigue lasts for several days. Once you PPMS is starting to advance past the able walking stage you will feel the need for rest and frequently. I'm trying to get out of many resposibilities where I have an obligation to do something.Even seated I wear out fast.We need to be a little selfish when it comes to rest and not enough of it .Our MS bodies once we reach the wheelchair stage are usually tired all day long. Don't let any one tell you being a wheeler is easy or it should be easier that walking with crutches and braces. .Walkin as such has become for many of us not an option any more. We should think of our selves as TOTALLY RETIRED. Richard April 15,2008 |
| Expecting too much out of a progressing MS body? | You Can't force MS to behave as you like |
| Don't try to please people saying you will take on a "easy thing like calling members of a club on the phone to remind them of a meeting.One of my clubs even expected me to get out a publication I could send to members via the e-mail.I did it for a while as it was a sitting job.But massive fatigue starts to envelope your whole body in PPMS.I had to give it up. I know now I need rest naps twice a day.I also need very little to accomplish.My spouse used to saay to me,"what do you have planned today? I would say a few things ,as few as possible They she come to realize I needed as few commitments as possible and I now say I have no plans today. That isn't lazy its what this progressive form does to any ambitions you may have thought of for today. There is a calm I now enjoy just seated and reading or being on the internet or just drawing ,painting or just out for a ride on my scooter. RET 9/29/07 |
Thinking that your MS difficulties to behave as you would have it do is like expecting the US government to do away all taxes. It us who adjust to the demands of MS loss of mobility.We adjust when muscles just will not work as we need then to work. And they will get that way in progression.The drug treatments are only desease modifers. Which means they will slow down progression and stretch it out over time. Richard June 11,2008 |
| Eileen Lukeman and Richard Tanner | FL. | Eileen(Lobosgirl) and Richard (RET1000) both at aol.com |
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