The best definition of FMS and explanation of symptoms that I have found come
from Dr. Devin Starlanyl's site:
"FMS is not new. It was first described by William Balfour, a surgeon at the
University of Edinburgh, in 1816. The medical profession called it many different
names, including chronic rheumatism, myalgia, pressure point syndrome, and
fibrositis. The condition was also thought to be psychological by some physicians, but
that notion must now be relegated to the Dark Ages of medicine.
In 1987, the American Medical Association (AMA), recognized FMS as a true illness
and a major cause of disability. Now, nearly ten years later, it is still, unfortunately,
too often dismissed as the "newest fad disease", and most physicians still lack the
knowledge to diagnose and treat it.
FMS is not a catchall, "wastebasket" diagnosis. FMS is a specific, chronic
non-degenerative, non-progressive, non-inflammatory, truly systemic pain condition.
Diseases have known causes and well-understood mechanisms for producing
symptoms. FMS is called a syndrome, which means it is a specific set of signs and
symptoms that occur together. Don't let this fool you into thinking that fibromyalgia
is any less serious or potentially disabling than a disease. Rheumatoid arthritis, lupus,
and other serious afflictions are also classified as syndromes. Lab tests for
fibromyalgia are valid only to rule out other conditions. There is no blood test that
can accurately identify fibromyalgia.
The official definition requires that tender points must be present in all four
quadrants of the body -- that is, the upper right and left and lower right and left
parts of your body. You must have had wide-spread, more-or-less continuous pain
for at least three months. Tender points occur in pairs on various parts of the body.
Because they occur in pairs, the pain is usually distributed equally on both sides of
the body.
In traumatic FMS, tender points are often clustered around an injury instead of, or in
addition to, the 18 "official" points required for a patient to be able to enter a clinical
fibromyalgia study. These clusters can also occur around a repetitive strain or a
degenerative and/or inflammatory problem, such as arthritis.
FMS can occur at any age. Most patients, when questioned carefully, reveal that
their symptoms began at an early age. About 25 percent of the FMS patients I see
are men. This ratio differs from most sources in the literature. I think that this is due
to FMS being underdiagnosed in males.
Flu-like achiness is frequently the most prominent symptom of FMS, but there are
many others. For example,
Your eyes may be too dry, but at other times they will water;
Your thermal regulatory system is out of whack. You may notice this thermal
fluctuation when you get out of bed (which may be often, due to bladder irritability)
during the night;
You may have to wait for your temperature to cool down after getting back in bed
before you can pull the bedcover up.
Another symptom of FMS is spasticity (tightness) which can constrict the peripheral
blood vessels -- those close to the skin. This symptom, especially in the winter,
makes certain parts of our bodies -- most often the buttocks and thighs -- feel like
cold slabs of meat. You may experience skin mottling. Fingernails can break off,
often in crescent-shaped pieces. If nails do grow, they sometimes start to curve
under.
FMS is a sensitivity-amplification syndrome. This means that people with
Fibromyalgia can be sensitive to smells, sounds, lights, odors, pressure and
temperature fluctuations and vibrations. The noise emitted by fluorescent lights can
drive you crazy. FMS sensitizes nerve endings as well as the rest of the autonomic
nervous system, which means that the ends of the nerve receptors may have
changed shape.
Because of this, for example, your body might interpret touch, light, or sound as
pain. Your brain knows pain is a danger signal -- an indication that something is
wrong and needs attention -- so it mobilizes its defenses. Then, when those
defenses aren't used, you become anxious.
Sleep plays a crucial role in FMS. Perhaps you aren't getting enough sleep, or the
right kind of sleep. You may have insomnia, or a host of other sleep-related
problems.
People with FMS often have the alpha-delta sleep anomaly. As soon as we reach
deep delta level sleep, alpha waves (awake) intrude and either jolt us to an
awakening or to a lighter stage of sleep. The body heals and many
neurotransmitters are restored during delta sleep, so we soon suffer from sleep
deprivation.
Neurotransmitters are electro-biochemical agents that cross nerve synapses. They
are the vehicles that carry information back and forth between your body and mind.
One might say that neurotransmitters are the "information superhighway" between
the body and mind.
Much of our mental and physical sense of continuity and security depends upon our
ability to repeat appropriate and predictable actions, but this is disrupted in FMS.
Neurotransmitters normally inform muscles constantly about what they're doing so
their actions can be modified.
Much of our muscle tension function is improperly controlled by these
neurotransmitters. Healthy people think nothing of picking up a glass of water and
bringing it to their lips. They know just how tightly their hand has to grip, how heavy
the glass of water feels, and how much speed is appropriate to accomplish this act
smoothly.
People with Fibromyalgia, however, lack proper sensory feedback. The thumb
grasps with too little pressure, and the wrist muscle lets go when flexed. The
economy of effort is not there. To enable us to sit, walk, and stand, the entire
musculature must be able to feel its own activity, and we often can't do that.
Only about 20% of FMS cases have a known triggering event that initiates the first
obvious "flare." During a flare, current symptoms become more intense, and new
symptoms frequently develop."
Excerpted from "Fibromyalgia and Chronic Myofascial Pain Syndrome: A Survival
Manual" by Devin J. Starlanyl and Mary Ellen Copeland M.A. M.S., © copyright 1996
Devin Starlanyl, All Rights reserved. Please get the book for further information.